Let's hear from some volunteers
Phillip Clark - Coordinator of Bristol Support Group
"I have been working with Ataxia UK for a while now and found them as a result of my daughter having the condition. Knowing first hand what support one may need I felt I would like to see if I could contribute, but just did not know how. Ataxia UK and the people that work there are kind, friendly, efficient and so positive; offering the tools, guidance and framework for anyone with energy to input such in the correct manner. They have helped me reap the reward of providing some support for local people, and I love volunteering as I see that through a little care and effort one can offer support which matters."
Patsy Riggs - Coordinator of Ipswich & Colchester Support Group
"I co-ordinate the Ipswich & Colchester Support Group and looking forward to the return of our meetings. When I was diagnosed with cerebellar ataxia in 2002, I searched the internet for information and found the Ataxia UK website. Their helpline was invaluable to me and although when first invited to start a local support group, I didn't feel confident or able to do it, their encouragement persuaded me otherwise.
Running this group, has from the start and still is, the main focus of my life. It is so rewarding and indeed therapeutic, I really enjoy the communication with people who understand my own challenges.
Covid-19 is preventing us from physical meetings but I write a monthly newsletter with snippets of news from everyone. The words of appreciation are really rewarding and although I suffer with anxiety, it is very worthwhile. Keeping things informal means that we support each other."
Derek Wood - Coordinator of Farnham Support Group and Ataxia Centre Volunteer
"I was diagnosed with Late-Onset Idiopathic Spino-Cerebellar Ataxia in 2009 and after attending South Downs branch meetings for a while, I was invited to an exploratory meeting in Farnham. Long story short, I was nominated group leader and still perform that function today.
A few years ago, I was asked to join the group of volunteers meeting patients after their Queens Square consultations. That was the single most rewarding thing I've ever done. Since the pandemic we have carried on online. In addition, a year ago I joined the Friends Connect scheme and that, too, has been very fulfilling.
I have also become involved in developing our Support Group & Branch network and I look forward to working with our colleagues to enhance the service to our fellow Ataxians. There is no doubt my symptoms have progressed but I enjoy the interaction with everyone and I am not ashamed to admit that my activity is not entirely altruistic as I personally derive a great deal of satisfaction.
There are many Ataxians whose lives are far more affected than I am by the condition so if I can do anything to help them I will. I am constantly so impressed by their resilience and bravery."
Derek Taylor - Chair of West Of Scotland Branch
"I’m currently Chair of the West of Scotland Branch, having been treasurer of the Branch for about 10 years before this. I want to ‘give something back’ to our community and to use my skills and share experiences to help and offer support to my fellow Ataxians. As well as being affected by ataxia, I think Ataxia UK 'punches above its weight' in the support it can provide via support groups as well as the helpline and research."
Rebecca Downing
"I volunteer for Ataxia UK because I make a positive difference to the lives of those affected by ataxia in many ways!"
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