Wellbeing survey report
Read the results of our InControl Wellbeing Survey, distributed in June 2020.
Wellbeing survey report Read More »
Cruel consequence of ataxia unawareness
Our Media Ambassador, Annabel Wilford, shares a story about her grandma who has ataxia and experienced prejudice due to her ataxic symptoms.
Cruel consequence of ataxia unawareness Read More »
Positive results from Niemann Pick Type C clinical trial
IntraBio announce drug IB1001 improves symptoms of NPC
Positive results from Niemann Pick Type C clinical trial Read More »
Diagnosing and treating primary autoimmune cerebellar ataxia (PACA)
Professor Hadjivassiliou at the Sheffield Ataxia Centre, and his colleagues have been investigating a type of ataxia, known as ‘PACA’, that could be responsible for a number of idiopathic ataxia cases.
Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Read More »
Let’s talk about diagnosis… with Marcia
After not being believed by many medical professionals, Marcia faced a very difficult time trying to find answers for her symptoms.
Let’s talk about diagnosis… with Marcia Read More »
Let’s talk about diagnosis… with Ayesha
Despite Ayesha being diagnosed with SCA7 quite quickly, she lives in Pakistan and tells us that there is no support available.
Let’s talk about diagnosis… with Ayesha Read More »
Let’s talk about diagnosis… with Karina and Sophie
Sophie’s ataxia diagnosis journey was made incredibly difficult, her mum Karina tells us about it.
Let’s talk about diagnosis… with Karina and Sophie Read More »
Let’s talk about diagnosis… with Marc
For Marc it took one to two years to get an ataxia diagnosis and the process was anything but easy.
Let’s talk about diagnosis… with Marc Read More »
Let’s talk about diagnosis… with Leeann and Kieran
Leeann started noticing symptoms in Kieran from four years old, but it wasn’t until three years later they received a diagnosis.
Let’s talk about diagnosis… with Leeann and Kieran Read More »
Let’s talk about diagnosis… with Melissa and Ivy
Melissa tells us about her daughter Ivy who is struggling to find a cause for her ataxia.
Let’s talk about diagnosis… with Melissa and Ivy Read More »
Let’s talk about diagnosis… with Chris
Chris knew her condition was more than anxiety, and after asking for a second opinion, she was diagnosed with late onset Friedreich’s ataxia.
Let’s talk about diagnosis… with Chris Read More »
Let’s talk about diagnosis… with Kelly and James
Despite the amount of medical professionals James has seen, Kelly tells us that they still have no confirmed diagnosis for James.
Let’s talk about diagnosis… with Kelly and James Read More »
Let’s talk about diagnosis… with Mhairi
After 27 years of episodes, I Mhairi was finally diagnosed with ataxia; here’s her story.
Let’s talk about diagnosis… with Mhairi Read More »
Let’s talk about diagnosis… with Sarah
Sarah’s ataxia diagnosis journey was intense and it took almost a decade.
Let’s talk about diagnosis… with Sarah Read More »
Let’s talk about diagnosis… with Phil
Phil was in the dark about his condition for over two years, then he was eventually diagnosed with ataxia.
Let’s talk about diagnosis… with Phil Read More »
Update From Us
Due to current circumstances, staff at Ataxia UK are working from home. The helpline is still running and you can access this on the usual number 0800 995 6037. It’s open Monday
COVID-19 !&A Webinar
We are very pleased that Prof Giunti and Suzanne Booth from the London UCL/UCLH Ataxia Centre have offered to run another webinar session for advice surrounding the current Covid-19 guidelines
COVID-19 !&A Webinar Read More »
Telephone notice
Our telephones lines may be down for the next few weeks, click here for more information.
IARC 2019
The latest IARC was held in 2019 in Washington, DC. It was organised by Ataxia UK, FARA, FARA Australia and GoFAR, and was a great success, with over 400 attendees.
The Mark Dower Trust: Emma Keogh
“This grant has meant everything to me. Exercise has become a huge part of my life, both for my physical and mental wellbeing. I would go as far as saying
The Mark Dower Trust: Emma Keogh Read More »
Disappointing news from Reata and FDA regarding Omaveloxolone
An update about Reata Pharmaceuticals Omaveloxolone trial in FA
Disappointing news from Reata and FDA regarding Omaveloxolone Read More »
Life can change in a heartbeat
An ataxia diagnosis never comes lightly, but for Kate Davenport and her daughter, it was a life-changing shock. Read her story here.
Life can change in a heartbeat Read More »
The Mark Dower Trust: Emma Keogh
Emma applied to the Mark Dower Trust for a grant towards an exercise bike. After successfully receiving the grant, here she tells us about it.
The Mark Dower Trust: Emma Keogh Read More »
Covid-19 Q&A webinar
Watch a recording of our webinar with Prof Paola Giunti and Ataxia Nurse Suzanne Booth.
Covid-19 Q&A webinar Read More »
Speech therapy project shows success
In a project funded by Ataxia UK and the Swiss Association of Friedreich’s Ataxia (ACHAF), Professor Anja Lowit showed positive results using Lee Silverman Voice Treatment (LSVT) for ataxia.
Speech therapy project shows success Read More »
Arginine shows promise in a number of different ataxias
Researchers in Japan have shown that a compound called Arginine is able to prevent harmful protein clumps from forming in cell models of polyglutamine disorders.
Arginine shows promise in a number of different ataxias Read More »
Ataxia Magazine 209
Raising awareness in Scotland, International Ataxia Research Conference 2019, Supporting you around Motability, and the new Ataxia UK ID Card.
Ataxia Magazine 209 Read More »
My emotional struggle with ataxia: part two
After Beth’s first blog post focusing on her emotional challenges with ataxia, this time she looks at physical challenges.
My emotional struggle with ataxia: part two Read More »
Ataxia Magazine 208
Exciting news on an FA trial, International Ataxia Awareness Day 2019, The Big Give 2019, Children’s Ataxia Centre in Sheffield and our new InControl project.
Ataxia Magazine 208 Read More »
My emotional struggle with ataxia: part one
In part one of Beth’s story, she explores and discusses her emotional journey with having ataxia.
My emotional struggle with ataxia: part one Read More »