Max achieves big, despite his ataxia
Read about Max’s journey to his ataxia diagnosis, and his love for media.
Max achieves big, despite his ataxia Read More »
Research Impact Report 2020
Read a summary of the impact of Ataxia UK-funded research in the Research Impact Report 2020
Research Impact Report 2020 Read More »
Lockdown life with ataxia: part one
Ataxia UK’s Co-Chair Richard Brown tells us about his life in lockdown.
Lockdown life with ataxia: part one Read More »
Genetic approach to treat many spinocerebellar ataxias
Dr Marta Olejniczak and her colleagues have used a genetic tool to silence the expression of mutated genes containing expanded CAG repeats in patient-derived cell lines of various ataxias.
Genetic approach to treat many spinocerebellar ataxias Read More »
Ataxia VS Covid-19
This strange new reality feels like a temporary apocalypse, an unwelcome interruption to our daily norms
Ataxia VS Covid-19 Read More »
A Time for Reflection
The measure is always in dusting yourself off, and to keep trying until all the incredible hard work sticks
A Time for Reflection Read More »
The importance of support: before and after receiving a diagnosis
Ami Hook-Ireland shares her story of the challenges she faced living with ataxia and how ongoing support made a positive difference in her life.
The importance of support: before and after receiving a diagnosis Read More »
Update from us
Staff are working from home due to Covid-19, find out how you can contact the office.
Now that’s what Ataxia UK calls lockdown
Self-isolation can be lonely and boring. That’s why we have created a series of online activities to bring the ataxia community together!
Now that’s what Ataxia UK calls lockdown Read More »
“Everyday is Different Depending on my Stability”
David has late-onset spinocerebellar ataxia type 6 and has written a blog about different forms of mobility assistance in hope that it will help anyone considering to purchase one.
“Everyday is Different Depending on my Stability” Read More »
Exenatide in FA research
Research shows exenatide increases frataxin in cell models and platelets in people with FA.
Exenatide in FA research Read More »
“Winning the European Team Silver Medal was indescribable, a dream come true”
Here is Mari Durward-Akhurst to tell the story of her incredible achievement, and the roots of her riding.
“Winning the European Team Silver Medal was indescribable, a dream come true” Read More »
Ataxia Ambassadors
The latest information on becoming an Ataxia Ambassador!
Ataxia Ambassadors Read More »
Advice
We interviewed members of the 16-30’s group about topics such as relationships, living independently and exercise with ataxia.
The Mark Dower Trust
The Mark Dower Trust offers a grant to promote independence for people aged between 16 and 30 with ataxia. Find out more here.
The Mark Dower Trust Read More »
Ataxia UK’s Scottish Conference postponed
Due to circumstances with the spread of coronavirus, Ataxia UK has decided to postpone the Scottish Conference which was due to happen in June 2020.
Ataxia UK’s Scottish Conference postponed Read More »
Get involved
Being part of the 16-30’s group means you can join in with various events going on. Click here to find out what’s on offer!
Implications of coronavirus (covid-19) for people with ataxia
How Covid-19 can affect someone with ataxia and ways to keep yourself safe during this pandemic.
Implications of coronavirus (covid-19) for people with ataxia Read More »
Exicure to launch gene therapy programme in Friedreich’s ataxia
Exicure have announced Friedreich’s ataxia (FA) as the therapeutic indication for the company’s first neurology development programme for their gene therapy technology.
Exicure to launch gene therapy programme in Friedreich’s ataxia Read More »
New clinical trial testing HIV treatment, Etravirine, as potential therapy for FA to begin this year in Italy
A research group in Italy will soon be launching a clinical trial in an effort to repurpose anti-viral drug Etravirine for use in FA.
Ataxia UK “I’m not drunk” ID card
Ataxia UK I’m not drunk awareness ID cards.
Ataxia UK “I’m not drunk” ID card Read More »
Triplet Therapeutics is developing a fundamentally different treatment for repeat expansion disorders such as various spinocerebellar ataxias
Triplet Therapeutics are developing a new treatment that aims to address the underlying cause of the genetic dysfunction responsible for repeat expansion disorders including various SCAs.
uniQure publishes data from spinocerebellar ataxia type 3 gene therapy study
Leading gene therapy uniQure have published data on their gene therapy candidate AMT-150.
uniQure publishes data from spinocerebellar ataxia type 3 gene therapy study Read More »
365 days of shorts
The incredibly motivated man David Arnold is wearing shorts every day during 2019. Read his story here.
365 days of shorts Read More »
Chondrial Therapeutics Announces Dosing of First Patients in Phase 1 FA trial
Chondrial Therapeutics recently announced that the first person has been treated in a Phase 1 clinical trial to assess the safety and tolerability of CTI-1601.
Chondrial Therapeutics Announces Dosing of First Patients in Phase 1 FA trial Read More »
Targeting the genetic cause of DRPLA
A project targeting the genetic cause of DRPLA, a rare form of ataxia, has received further funding from Ataxia UK.
Targeting the genetic cause of DRPLA Read More »
Friedreich’s ataxia research project identifies new drug targets
An Ataxia UK funded project using an innovative gene editing approach has identified 23 potential drug targets.
Friedreich’s ataxia research project identifies new drug targets Read More »
The Big Give – you did it!
Find out what this year’s money will be going towards…
The Big Give – you did it! Read More »
A Social Worker, a Home-Help and a GP walk into a Service User’s life
Anita Gracey has Friedreich’s ataxia and writes poems about how her condition affects her life.
A Social Worker, a Home-Help and a GP walk into a Service User’s life Read More »
Ataxia Magazine 207
Episodic ataxia type 1 results, International Ataxia Awareness Day, Music therapy and finding the right aid for you.
Ataxia Magazine 207 Read More »
