NHS England has included hereditary ataxia in the final draft of the National Genomic Test Directory for rare and inherited disorders and cancer
Final draft of National Genomic Test Directory includes hereditary ataxia Read More »
Euro-ataxia held the latest annual meeting on 9-10th November 2018 in Frankfurt, Germany, hosted by the German ataxia charity DHAG, organised by Ataxia UK and sponsored by BioMarin.
Euro-ataxia conference 2018 Read More »
The AMRC has released their expenditure statistics for 2018.
AMRC releases annual research expenditure statistics Read More »
A new placebo-controlled trail in humans, testing a novel therapy, Tak-831 for Friedreich’s ataxia, has begun in America.
Results of a study evaluating TAK-831 in adults with Friedreich’s ataxia (FA) Read More »
Second trial investigating troriluzole in spinocerebellar ataxia announced by Biohaven pharmaceuticals to commence at the end of January.
SCA drug trial to begin in America Read More »
International Ataxia Research Conference (IARC) 2019 – Save the date! Ataxia UK, GoFAR, FARA US and FARA Australia are pleased to announce the next International Ataxia Research Conference to be
Research News – October 2018 Read More »
The latest findings from a trial testing a potential new gene therapy for Friedreich’s ataxia have been announced.
Data released from preclinical study into gene therapy for Friedreich’s ataxia Read More »
Be inspired by Richard Bradford and his fantastically successful event, the EPIC 3-day Cycle.
The EPIC 3-day Cycle Read More »
Read about recommended exercises from our Friends; hiring a PA, and changes to how we process your data (GDPR).
Ataxia Magazine 202 Read More »
James Tattersall was introduced to ataxia after meeting his girlfriend in 2015. He has now completed 12 marathons in 12 months, supporting people affected by ataxia. Here is his journey.
My 12 in 12: James Tattersall Read More »
James took on the mighty challenge of running 12 marathons over 12 months in aid of supporting people with ataxia. Here is his journey of races across the world.
My 12 in 12: James Riddiford Read More »
As New Year’s Day sprung in 2017, Donna decided to begin raising money to support people with ataxia by participating in the 12 in 12 challenge. Donna tells us her story and what this journey means to her.
My 12 in 12: Donna Vant Read More »
A guide on finding fun and exciting ideas for accessible days out this winter.
Your guide to winter: fun and accessible ideas! Read More »
Join the team for a six-month contract, gaining your entry to the Charity Sector and, in particular, Fundraising.
Work for us: Fundraising Administration Intern vacancy Read More »
Join #TeamAtaxiaUK and sign up to one of our races today.
We’re due North: are you ready for the races? Read More »
Read about Jonathan’s journey of diagnosis and coping through his passion of music.
Coping with my condition: Jonathan’s Story Read More »
Office and Helpline closing dates this Christmas
Christmas Closure: AUK’s office hours Read More »
Happy New Year!
We hope you had a lovely Christmas.
If you had a bad haul, we’re asking for unwanted gifts as raffle prizes!
Post-Christmas gifts Read More »
These are the children you’re helping this Christmas by donating to The Big Give: one day left.
Our children’s stories Read More »
Applications closing soon for young people’s financial support. Increase your independence through further studies, employment, specialist equipment or hobbies/ skills.
Mark Dower Trust: deadline 31 January Read More »
“Her school thought we were making it up; they thought I’d fabricated her ataxia. They put Jade on the child protection register.”
Judged and jaded: our family’s story Read More »
“Children meeting Jo-Jo for the first time are wary, they just don’t seem to know how to play with her. Her walking frame is a quite literally a barrier to intimacy. They don’t want to hold her hand at a party.”
Jo-Jo’s Journey: moving forward Read More »
“Nothing could prepare me for what I was about to hear: “he’s lucky to have even lived past two years.”
Better care for Kayden: our son’s story Read More »
“A Specialist Ataxia Centre for children could help us find treatments that are effective now. Seb could be well; could develop; could enjoy his childhood, without the barriers that ataxia brings.”
Support for Seb: our son’s story Read More »
“There was no one to tell me how I should handle all this, no one who could point me in the right direction, no one to teach me how to manage my symptoms.”
Praying for the Future: Tallulah’s story Read More »
“I don’t even feel like I had a childhood. I mean, I still grew older but it seemed the older I got, the worse I got. Symptoms. Hospital appointments. Diagnosis. More, and worse, symptoms. Hospital appointments.”
Congratulations, me! Beka’s Story Read More »
Jordan Jervis has spinocerebellar ataxia type 1. But this hasn’t stopped him pursuing his dream of becoming a clothing designer.
Fashioning his dreams: Joe’s Story Read More »
Christmas cards now on sale from the Ataxia UK website shop!
Ataxia UK Christmas cards: now on sale Read More »
Double your Christmas gift to Ataxia UK without giving an extra penny!
The Big Give Christmas Challenge 2018! Read More »
