Irmak Dogan

Here is a blog post from Martha, Ataxia UK Friend, where she talks about her ataxia story and ataxia care. Hi, my name is Martha, here is a piece I […]

Here is another fantastic blog post from our Friend, Tallulah, who has written about having ataxia and being pregnant. This article was shared in support of Rare Disease Day 2025.

Our Friend, Philip, is part a lovely online racing community called ‘Bongo’ and he has chosen to write about his journey.  My name is Philip, and I am 55 years old.

Here a blog post from our Friend, Laura, in support of this year’s International Ataxia Awareness Day. I don’t expect many people to know that the 25th of September is

Hey everyone, my name is Monika. I am a 47-year-old widow, and I would like to share my journey of living with Cerebellar ataxia, a genetic condition that has profoundly

Harriet Brown, a Trustee of Ataxia UK who has idiopathic cerebellar ataxia tells us about her dog, Henry.  Henry is our 2 ½ year-old cocker spaniel. He came to live

An overview of the ataxias:  Hi, I’m Carol, and I run the “Gluten Ataxia and Autoimmune” support group as a volunteer for Ataxia UK. I am not a medical professional,

Here is another fantastic blog post from our friend Ali. In his blog post, Ali talks about the importance of staying positive and believing in yourself. I’m calling out to

Our friend, Laura, has kindly shared her ataxia journey with us and wrote a little about the importance of acceptance.   Hi, I’m Laura. I’m 19 and in my first year

At Ataxia UK, our mission to improve the lives of those affected by ataxia would not be possible without the support and dedication of our incredible community. We want to

World Wellbeing Week is from 24th to 30th June, it’s a perfect time to reflect on the importance of wellbeing, especially within the ataxia community.  We understand that living with

Hi, it’s Ali again. You might remember me from my previous blog post.   Not much has changed since I shared my story with you all. The only new thing is

After the amazing presentation about assistance dogs from Dogs for Good at our Annual Conference in October 2023, we thought it would be interesting to hear from the ataxia community

Louise, in her blog post, explains her ataxia journey and reminds us to be inspired by our courageous resilience. My name is Louise, and I was born in Ceredigion, Wales,

Here is a snippet of Anamaria’s journey, she shared her story in support of the Rare Disease Day Campaign. My adventure with this condition began at the age of 16,

Here is a fantastic blog post from our wonderful Friend, Tallulah. She talks about love and self-worth. As she puts it, “I talk about my own preconceptions, my internalized ableism

Our friend, Laura, has kindly shared her thoughts with us in support of the Rare Disease Day campaign. She talks about the importance of acceptance and a little about her

Our Friend, Alan, has contacted us following his ataxia diagnosis. Here, we bring you a story of his diagnosis, his daily life, struggles and coping mechanisms. If you find yourself

Being someone’s ‘carer’ may only be part of the relationship description. You may be a parent, partner, sibling, child, grandchild, friend or other relative. This relationship can be just as,

Holly (7) is Ataxia UK’s young friend, who, this summer holidays, will cycle 100 miles to support the Ataxia UK community. She did this incredible fundraiser for her Pappy, David.

Meet Laxmi, she lives in India and has Friedreich’s ataxia (FA). In her blog post, she explains the importance of family support!  I want to tell you a bit about myself. I