Irmak Dogan

Meet Richard, the Co-Chair of Ataxia UK, who will in his blog tell you a bit about himself. Hey Ataxia UK family and friends, some of you know me already […]

Hi everyone! It’s David here, Jim’s gym buddy, you might know us from my previous blog.   In this blog I will tell you how Jim’s motivation encouraged him to

Ed writes about his thoughts and journey after being diagnosed It’s worrying. Finding out you have this genetic disease which does not have a cure and there’s very little known

 Lali started a blog series with ‘Finding my ship’. In this blog, she will continue to tell you about her journey of exploration of the Atlantic Ocean. From Cape Verde,

Ed, one of Ataxia UK’s  media ambassadors, talks about his diagnosis journey. Hi, My name’s Ed and I have hereditary cerebellar ataxia – specifically, SYNE1-related spinocerebellar ataxia (ARCA8). Symptoms have

Ali, a supporter from Turkey, writes about his diagnosis journey and experience with Ataxia UK. Hi everyone! I’m Ali Demirsoy, 24, I live in Gaziantep, Turkey. Generally, I’m at home

Martyn Hurt here – you may remember me from my previous blogs!   Before being diagnosed, I had never heard of ataxia at all, never mind different types. I knew

David talks about his gym buddy Jim, 73, who has spinocerebellar ataxia type 6. Jim was diagnosed with ataxia 4 years ago. Jim and I have been sports buddies for

Neil Casey was relieved to find out ataxia is the condition that had been troubling him for a long time, then he became a volunteer for Ataxia UK. I’m Neil,

Jay Patel is an All About Ataxia facilitator and shares his experiences of living with ataxia. I have SCA28. Most of my motor functions are affected to some degree. The

As Gemma continues her search for her exact ataxia type, she volunteers at our All About Ataxia sessions. I have a form of spinocerebellar ataxia but I am still undergoing

Peter Wormington writes about his experience with ataxia so far. I first realised something was wrong when I found the floor rather too sloping after a couple of pints on

Despite Olie’s diagnosis being a difficult time, he writes about how he changed his perspective. Six years ago at 21 years old, I was about to begin an exciting career

Hi. I’m Lali and I have ataxia. In this blog I will tell you about my adventurous journey of the Atlantic crossing. I flew out to the Canary Islands really

Helen McKnight has done karate on and off since she was 14 years old – here she tells us why.   After many misdiagnoses and doctors appointments I was finally diagnosed with spinocerebellar ataxia type

Hey ataxia fam and friends, I’m Dee! And I have Friedreich’s ataxia (This is not an AA meeting) I’m so used to people asking ‘Huh? What is that?’ It has

Hello! My name is Martyn Hurt and I’m 50 years old. I have type 2 episodic ataxia (EA2.) I was born in Nottingham but we moved away when I was

Peter Kahn has cerebellar ataxia and tells us how the speech therapy group with Anja Lowit has changed his life.  I was diagnosed with cerebellar ataxia around seven years ago and I’m 70 years old now. I am

Mark Deere has SCA28 and his speech problems have resulted in him having to stop working. Here he tells us why speech therapy is so important for those living with ataxia.  In 1990 I

Heather Deville has Friedreich’s ataxia (FA) and talks about how speech therapy has given her the confidence to speak in company.  I was diagnosed with FA at 49 years old and am now 57. Prior to my FA diagnosis

Greetings, I’m Martyn, I have type 2 episodic (EA2). I’d like to talk a bit about my political and community involvement experiences. I have been involved in community work since

Jaina’s cousin, Shivani, contacted Ataxia UK to share the blog posts written by Jaina before she sadly passed away. Jaina was diagnosed with Friedreich’s ataxia at 13 years old. In

Beth writes about her attitudes towards others’ perception of disability, and how it affects her life. It is exceedingly difficult to take on others uncomfortableness with your disability. It takes