Irmak Dogan

 Lali started a blog series with ‘Finding my ship’. In this blog, she will continue to tell you about her journey of exploration of the Atlantic Ocean. From Cape Verde, […]

Ed, one of Ataxia UK’s  media ambassadors, talks about his diagnosis journey. Hi, My name’s Ed and I have hereditary cerebellar ataxia – specifically, SYNE1-related spinocerebellar ataxia (ARCA8). Symptoms have

Ali, a supporter from Turkey, writes about his diagnosis journey and experience with Ataxia UK. Hi everyone! I’m Ali Demirsoy, 24, I live in Gaziantep, Turkey. Generally, I’m at home

Martyn Hurt here – you may remember me from my previous blogs!   Before being diagnosed, I had never heard of ataxia at all, never mind different types. I knew

David talks about his gym buddy Jim, 73, who has spinocerebellar ataxia type 6. Jim was diagnosed with ataxia 4 years ago. Jim and I have been sports buddies for

Neil Casey was relieved to find out ataxia is the condition that had been troubling him for a long time, then he became a volunteer for Ataxia UK. I’m Neil,

Jay Patel is an All About Ataxia facilitator and shares his experiences of living with ataxia. I have SCA28. Most of my motor functions are affected to some degree. The

As Gemma continues her search for her exact ataxia type, she volunteers at our All About Ataxia sessions. I have a form of spinocerebellar ataxia but I am still undergoing

Hi. I’m Lali and I have ataxia. In this blog I will tell you about my adventurous journey of the Atlantic crossing. I flew out to the Canary Islands really