Spinocerebellar ataxia type 3 (SCA3), also known as Machado-Joseph disease, is caused by a genetic mutation in the ATXN3 gene. SCA3 is thought to be the most common SCA worldwide, […]
Neurofilament light tracks SCA3 progression Read More »
The NHS guidance states anyone with a chronic neurological condition should be offered the flu vaccine for free. The guidance indicates that your GP should assess to take into account the risk
Flu jab for those with ataxia Read More »
Now that is what I call Lockdown Ataxia UK have created weekly activity sessions you can access from the comfort of your own home. These sessions will be held every
Lockdown online activities Read More »
Registering as extremely vulnerable to qualify for extra support Many people with underlying health conditions have already received notifications to advise staying inside for 12 weeks to self-isolate. You can
Are you classed as ‘extremely vulnerable’? Read More »
This guidance is based on information from the lead neurologists at the London UCL/UCLH and Sheffield Ataxia Centres. We are monitoring the situation and will update our guidance accordingly. Covid-19
Advice from ataxia specialists on Covid-19 Read More »
Mental health and wellbeing Talking to children about illness NHS Living Life is a free and confidential telephone counselling service based on a Cognitive Behavioural Therapy approach. The service is available
Q&A with Prof Paola Giunti and Suzanne Booth – 10 March 2021 ‘Coping with Covid’ with Prof Paola Giunti and Suzanne Booth – 16/17 October 2020 Click here to
Webinars and Q&A with ataxia specialists Read More »
