Ataxia UK started a partnership with CureDRPLA in March 2020 with the mission of advancing research for the very rare ataxia Dentatorubral-Pallidoluysian Atrophy (DRPLA) and finding potential treatments. With funding […]
Testing an experimental treatment for DRPLA and possible benefits for other rare ataxias Read More »
Ataxia UK has a collaborative partnership with CureDRPLA, a US-based non-profit organization that funds scientific projects to advance research for the rare ataxia Dentatorubral-pallidoluysian atrophy (DRPLA). Both Dr Julie Greenfield
Sharing the success of the DRPLA Research Conference Read More »
Article written by Dr Silvia Prades – DRPLA Research Manager On February 22nd, I organised a meet up for families affected by DRPLA who are based in Wales. I travelled
Successful meet up in Cardiff with DRPLA families Read More »
Ataxia UK and CureDRPLA are coordinating the DRPLA Natural History and Biomarker Study for this very rare form of ataxia. The funding for the study is provided by CureDRPLA. This
The DRPLA Natural History and Biomarkers Study is now recruiting participants Read More »
On May 11th, CureDRPLA hosted the first-ever conference on Dentatorubral-pallidoluysian atrophy (DRPLA) research, in Boston (USA). Ataxia UK has a collaborative relationship with CureDRPLA and we are working together to
2022 CureDRPLA Research Conference Read More »
Ataxia UK and the US Foundation CureDRPLA are the lead organisations of the CureDRPLA Global Patient Registry. This Registry aims to collect data on as many Dentatorubral-pallidoluysian atrophy (DRPLA) patients
DRPLA Patient Registry Read More »
