Ataxia Magazine 226
Ataxia Magazine 226 Read More »
Observe a Research Ethics Committee meeting
The NHS Health Research Authority (HRA), are an independent arm’s length body of the Department of Health and Social Care. Their core purpose is to protect and promote the interests
Observe a Research Ethics Committee meeting Read More »
Thank you for all your wonderful support in 2023
Friends through Volunteers to Branches & Support Groups, Fundraisers to donors, Trusts & Foundations, Researchers, and beyond… 2023 has been another challenging year, yet the camaraderie across the ataxia community
Thank you for all your wonderful support in 2023 Read More »
Complete a quick survey to encourage flexibility in New Drug Application approvals by FDA
You may have seen that recently the United States Food and Drug Administration (FDA) issued a refuse to file letter to Biohaven regarding their New Drug Application (NDA) for troriluzole
Ataxia UK is thrilled to announce the refunding by the National Lottery Community Fund
In 2019, Ataxia UK won a grant for three years of support from the Lottery Community Fund for a programme to study isolation and loneliness in the ataxia community and
Ataxia UK is thrilled to announce the refunding by the National Lottery Community Fund Read More »
Research project – understanding the spectrum of SCA1, SCA2, SCA3 & SCA6
Biohaven Pharmaceuticals are working with Engage Health on this research project to learn more from families impacted by SCA types 1, 2, 3, or 6 regarding the burden and impact
Research project – understanding the spectrum of SCA1, SCA2, SCA3 & SCA6 Read More »
A note from Ataxia UK regarding AmazonSmile
Like every small charity, where every penny really does make a huge impact, we are just as disappointed as you to be finding out today that Amazon will be ending
A note from Ataxia UK regarding AmazonSmile Read More »
Help understand the use of digital health tech
Neurological Alliance, of which Ataxia UK is a member, is working with the University Hospital Southampton to better understand the use of digital technology in neurology outpatient care. As part
Help understand the use of digital health tech Read More »
FREE course to improve understanding of health research processes
New FREE eLearning course aims to improve understanding of health research processes The European Federation of Neurological Associations (EFNA) has launched a new eLearning course on the theme of research,
FREE course to improve understanding of health research processes Read More »
Millie Mae in conversation with Dan Beacon
Watch this video of Millie Mae in conversation with Dan Beacon, discussing her life with Friedreich’s ataxia, her plans for the future and catching up on her journey since we
Millie Mae in conversation with Dan Beacon Read More »
Reflections from ICAR by Ataxia UK Trustee Carol
This year saw the International Congress for Ataxia Research (ICAR) held in Dallas, Texas, from 1st – 4th November 2022. The outcome of the research presentations will be reported by
Reflections from ICAR by Ataxia UK Trustee Carol Read More »
Meet the Graves, founders of Micro Acres Wales
Donna and Chris are a couple from Wales who run a family business called Micro Acres Wales. A recent diagnosis of ataxia prompted Chris to change his lifestyle in order
Meet the Graves, founders of Micro Acres Wales Read More »
