Virtual Activities
Virtual activity groups for the Ataxia Community Our Virtual Activity groups started in the first Covid-19 lockdown and have been so popular that we’ve continued with them ever since. At […]
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Latest News
Ataxia UK hosts an educational webinar on the UK medicines approval process
On 12th July Ataxia UK hosted a webinar on how medicines get approved for use in the UK and how decisions are made on their funding in the NHS. The
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Observe a Research Ethics Committee meeting
The NHS Health Research Authority (HRA), are an independent arm’s length body of the Department of Health and Social Care. Their core purpose is to protect and promote the interests
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Thank you for all your wonderful support in 2023
Friends through Volunteers to Branches & Support Groups, Fundraisers to donors, Trusts & Foundations, Researchers, and beyond… 2023 has been another challenging year, yet the camaraderie across the ataxia community
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Positive news regarding Skyclarys® approval in the EU
Ataxia UK is delighted with today’s announcement from the EMA’s Committee for Medicinal Products for Human Use (CHMP), the regulatory body that makes recommendations on drug approvals in the EU.
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Reflecting on the 7th International ARSACS Symposium 2023
The 7th International Symposium on Autosomal Spastic Recessive Ataxia of Charlevoix-Saguenay (ARSACS) was held on 19th-20th October, welcoming 200 people online and in-person, from researchers to clinicians, neurologists, physiotherapists, medical
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Reflections on the Ataxia UK Annual Conference 2023
On Friday 20th and Saturday 21st October 2023, Ataxia UK held their first ever hybrid in-person and virtual annual conference for families affected by ataxia. The conference, which took place
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University student joins Friedreich’s ataxia research lab following his sister’s FA diagnosis
In this article, Owen Gittins, a 3rd year undergraduate student in biochemistry at the University of Cambridge, shares his journey into and involvement in Friedreich’s ataxia (FA) research. My
Euro-ataxia hosts first in a series of webinars with Ataxia UK on gene therapy
On 19th September, Euro-ataxia hosted its first webinar on gene therapy as part of a new series with Ataxia UK. 70 audience members attended live, and 70 watched the recording.
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AAA+ Life Hacks
Join us for an engaging and informative 90-minute session where we share Life Hacks which can help people living with ataxia to live your best lives! Developed by people with
Complete a quick survey to encourage flexibility in New Drug Application approvals by FDA
You may have seen that recently the United States Food and Drug Administration (FDA) issued a refuse to file letter to Biohaven regarding their New Drug Application (NDA) for troriluzole
Ataxia UK is thrilled to announce the refunding by the National Lottery Community Fund
In 2019, Ataxia UK won a grant for three years of support from the Lottery Community Fund for a programme to study isolation and loneliness in the ataxia community and
Ataxia UK is thrilled to announce the refunding by the National Lottery Community Fund Read More »
Occupational Therapy and You
We are Karishma and Lara, MSc. Occupational Therapy students from the University of Brighton on placement at Ataxia UK. Join us as we introduce the role
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A note from Ataxia UK regarding AmazonSmile
Like every small charity, where every penny really does make a huge impact, we are just as disappointed as you to be finding out today that Amazon will be ending
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Help understand the use of digital health tech
Neurological Alliance, of which Ataxia UK is a member, is working with the University Hospital Southampton to better understand the use of digital technology in neurology outpatient care. As part
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FREE course to improve understanding of health research processes
New FREE eLearning course aims to improve understanding of health research processes The European Federation of Neurological Associations (EFNA) has launched a new eLearning course on the theme of research,
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Millie Mae in conversation with Dan Beacon
Watch this video of Millie Mae in conversation with Dan Beacon, discussing her life with Friedreich’s ataxia, her plans for the future and catching up on her journey since we
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Meet the Graves, founders of Micro Acres Wales
Donna and Chris are a couple from Wales who run a family business called Micro Acres Wales. A recent diagnosis of ataxia prompted Chris to change his lifestyle in order
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The Helpline is open!
If you would like to find out more, or talk to a member of the team, please get in touch via the Helpline, by calling 0800 995 6037 or by
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Virtual Annual Conference
Ataxia Unlocked Don’t worry if you missed this year’s conference as we recorded some of the brilliant sessions which you can watch below. Paul Coia interviews…
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Covid-19 vaccine update
With the availability of the vaccines in the UK, Ataxia UK has had a number of enquiries from people with ataxia about it. We, therefore, discussed this with our Medical
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The Big Give Christmas Challenge 2020
One week… one donation… DOUBLE the impact you can make to the future of the Ataxia UK Helpline and research. Click here to double your donation! This Christmas we have,
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Update From Us
Due to current circumstances, staff at Ataxia UK are working from home. The helpline is still running and you can access this on the usual number 0800 995 6037. It’s open Monday
COVID-19 !&A Webinar
We are very pleased that Prof Giunti and Suzanne Booth from the London UCL/UCLH Ataxia Centre have offered to run another webinar session for advice surrounding the current Covid-19 guidelines
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The Mark Dower Trust: Emma Keogh
“This grant has meant everything to me. Exercise has become a huge part of my life, both for my physical and mental wellbeing. I would go as far as saying
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