Euro-ataxia conference 2018
Euro-ataxia held the latest annual meeting on 9-10th November 2018 in Frankfurt, Germany, hosted by the German ataxia charity DHAG, organised by Ataxia UK and sponsored by BioMarin.
Euro-ataxia conference 2018 Read More »
Research News
Final draft of National Genomic Test Directory includes hereditary ataxia
NHS England has included hereditary ataxia in the final draft of the National Genomic Test Directory for rare and inherited disorders and cancer
Final draft of National Genomic Test Directory includes hereditary ataxia Read More »
Glut 1 deficiency syndrome trial announces negative results
A potential therapy for Glucose transporter 1 deficiency syndrome (Glut1 DS) has produced negative results in phase 3 of its clinical trial.
Glut 1 deficiency syndrome trial announces negative results Read More »
HIV treatment identified as potential future therapy for FA
Study finds anti-viral drug leads to decrease in frataxin levels and may be a potential future candidate for treating Friedreich’s ataxia (FA).
HIV treatment identified as potential future therapy for FA Read More »
Hope for gene therapy for Friedreich’s ataxia
This week results were published showing the effects of an AAV (adeno-associated virus) gene therapy in a new mouse model of Friedreich’s ataxia (FA).
Hope for gene therapy for Friedreich’s ataxia Read More »
Increasing levels of a protein in FA may be potential future therapy
Experiments performed in mice and in cells taken from Friedreich’s ataxia (FA) patients reveal a protein called ‘GRP75’ might be an effective future treatment approach.
Increasing levels of a protein in FA may be potential future therapy Read More »
International Ataxia Research Conference (IARC) 2019 – Save the date!
Ataxia UK, GoFAR, FARA US and FARA Australia are pleased to announce the date of 3rd International Ataxia Research Conference.
International Ataxia Research Conference (IARC) 2019 – Save the date! Read More »
Interview with PhD student and ataxia researcher Wayne Yau
We interview PhD student Wayne Yau about life as an ataxia researcher working on an Ataxia UK funded investigation on the role of genetic DNA repair mechanisms in a range of ataxias.
Interview with PhD student and ataxia researcher Wayne Yau Read More »
Data released from preclinical study into gene therapy for Friedreich’s ataxia
The latest findings from a trial testing a potential new gene therapy for Friedreich’s ataxia have been announced.
Data released from preclinical study into gene therapy for Friedreich’s ataxia Read More »
Research News – October 2018
International Ataxia Research Conference (IARC) 2019 – Save the date! Ataxia UK, GoFAR, FARA US and FARA Australia are pleased to announce the next International Ataxia Research Conference to be
Research News – October 2018 Read More »
SCA drug trial to begin in America
Second trial investigating troriluzole in spinocerebellar ataxia announced by Biohaven pharmaceuticals to commence at the end of January.
SCA drug trial to begin in America Read More »
Interview with PhD student and ataxia researcher Wayne Yau
Interview with PhD student and ataxia researcher Wayne Yau Ataxia UK is funding a project alongside the Spanish organisations R+SCAs (Plataforma de Apoyo a la Investigación de las Ataxias Espinocerebelosas)
Interview with PhD student and ataxia researcher Wayne Yau Read More »
Research News – May and June 2018
Catch up on the latest research news!
Research News – May and June 2018 Read More »
FDA Orphan Drug Designation for Spinocerebellar
IntraBio, a U.K. based biopharmaceutical company, has received an Orphan Drug Designation from the US Food and Drug Administration (FDA) for its lead compound (IB1000) for the treatment of spinocerebellar
FDA Orphan Drug Designation for Spinocerebellar Read More »
World Orphan Drug Congress 2018 – Washington DC
Ataxia UK was represented by research officer Dr Julie Vallortigara at the World Orphan Drug Congress in Washington DC. She shares her experience about this event.
World Orphan Drug Congress 2018 – Washington DC Read More »
Research News – October and November 2017
Catch up on the Autumn’s latest research news.
Research News – October and November 2017 Read More »
Research study aiming to improve speech in Friedreich’s ataxia looking for participants
A speech therapy clinical trial aiming to begin in February are urgently seeking people with FA to take part.
Research study aiming to improve speech in Friedreich’s ataxia looking for participants Read More »
New partnership between Ataxia UK and the Spanish organisations R+SCAs and ACAH
Ataxia UK is working for the first time with the Spanish ataxia patient group R+SCAs (PLATAFORMA DE APOYO A LA INVESTIGACIÓN DE LAS ATAXIAS ESPINOCEREBELOSAS) in funding a research project
New partnership between Ataxia UK and the Spanish organisations R+SCAs and ACAH Read More »
Latest Research News – May and June 2017
Read up on the latest research news!
Latest Research News – May and June 2017 Read More »
Research News – August and September 2017
Catch up on the Autumn’s latest research news.
Research News – August and September 2017 Read More »
AMRC Impact Report: Ataxia UK Case Study Featured
Ataxia UK’s involvement with AMRC’s report on the impact of medical charity-funded research.
AMRC Impact Report: Ataxia UK Case Study Featured Read More »
Latest Research News – March and April 2017
Read up on the latest research news!
Latest Research News – March and April 2017 Read More »
Latest Research News – January and February 2017
Read up on the latest research news!
Latest Research News – January and February 2017 Read More »
Latest Research News – December 2016
Read up on the latest research news!
Latest Research News – December 2016 Read More »
Latest Research News – September and October 2016
Read up on the latest research news!
Latest Research News – September and October 2016 Read More »
European Reference Networks
the European Commission approves the first 23 European Reference Networks for rare diseases (ERNs), including the one covering the ataxias.
European Reference Networks Read More »
Latest Research News – July and August 2016
Read up on the latest research news!
Latest Research News – July and August 2016 Read More »