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Volunteers Week is from 1 June until 7 June. We wanted to use this time to thank all our fantastic volunteers for all their support and incredible work. They have […]

We welcome Bayram, a friend who joined us recently. In his blog post, he tells us a bit about himself. Hi, I’m Bayram. I’m 32 years old and have Spinocerebellar

Ataxia UK’s Friend Beth has written another one in her series of blogs, this time focusing on the importance of being heard by medical professionals and expressing emotions. I think

You may know Martyn from his previous blogs. In this blog post, Martyn discusses his mobility and medication journey. After getting a diagnosis I was prescribed Acetazolamide and Topiramate. I

I’ve been living with the knowledge of having FA for almost eight years now. One might think I got used to this life and I should know what I am

I’m Duygu Akdeniz from Izmir, Turkey. I’m 30 years old. I worked as a librarian at the Ministry of National Education until October 2021. I have Friedreich’s Ataxia. The diagnosis

#AtaxiaUK is joining The Neurological Alliance and 44 other organisations from across England. We are urging the Secretary of State for Health and Care, Stephen Barclay to #BackThe1in6 and include

There I was. A wheelchair-using woman about to enter the Kurt Geiger showroom, about to model for a new disability-inclusive brand for their first runway show called Unhidden in the

Travelling is something I’ve always loved to do. I’ve been fortunate enough to have had the opportunity from a young age to immerse myself into many different cultures, try delicious

The Ataxia UK staff interviewed Yvette Loach and Vanessa Bartlett, the mother and Aunty of James Loach. James, a loving young man who passed away 10 years ago at the

Beth writes about her challenging experience with her bank’s voice recognition software.  My bank uses voice recognition as a security measure because they say your voice is unique. I have

Hey everyone! You may remember me from my previous blog. I’m back and would love to tell you more about myself! I am blessed to have two wonderful children and

Phoebe is 12 years old and has Friedreich’s Ataxia, she is a part-time wheelchair user. She lives in Devon with her younger sister. She is fun and outgoing with a

Helen McKnight takes her ataxia to a karate tournament!   I began my karate journey with preparation and nutrition. I eat nutritious foods. To build up my muscles, I need

Hi, I’m Ben, I’m 49, and I live in Buckhurst Hill, Essex. However, I’m originally from South London, which is why I support Millwall FC. I have progressive cerebellar ataxia,

Will Street has been a Friend and an amazing supporter of Ataxia UK for years. Some of you may know him through his company WillStreetTWF. We also wanted to extend

Hi, I’m Canberk from Turkey. Actually, from Hatay, the southern city of Turkey. I was born in 1996. My childhood was quite good, we were always travelling and going on

Hi Ataxia UK family and friends! This blog is about my Rugby journey and how ataxia affected my playing abilities. My name is Glyn Bennett, I was born in 1960

We’re supporting The Neurological Alliance’s #BackThe1in6 campaign, urging governments throughout the UK to establish a Neuro Taskforce to improve services for people with neurological conditions. Join us and sign the petition.

I would like to welcome you back to The Atlantic Crossing series. In this blog I will tell you all about the diverse environment and how much fun we had!.

Meet Richard, the Co-Chair of Ataxia UK, who will in his blog tell you a bit about himself. Hey Ataxia UK family and friends, some of you know me already

Hi everyone! It’s David here, Jim’s gym buddy, you might know us from my previous blog.   In this blog I will tell you how Jim’s motivation encouraged him to

Ed writes about his thoughts and journey after being diagnosed It’s worrying. Finding out you have this genetic disease which does not have a cure and there’s very little known

 Lali started a blog series with ‘Finding my ship’. In this blog, she will continue to tell you about her journey of exploration of the Atlantic Ocean. From Cape Verde,

Ed, one of Ataxia UK’s  media ambassadors, talks about his diagnosis journey. Hi, My name’s Ed and I have hereditary cerebellar ataxia – specifically, SYNE1-related spinocerebellar ataxia (ARCA8). Symptoms have

Ali, a supporter from Turkey, writes about his diagnosis journey and experience with Ataxia UK. Hi everyone! I’m Ali Demirsoy, 24, I live in Gaziantep, Turkey. Generally, I’m at home