On 23rd July, Ataxia UK hosted a webinar and Q&A on the UK approval process for Omaveloxolone (Skyclarys) in adults with FA. This was in partnership with the consultancy Realise Advocacy, specialists in the area of drug approvals.
The webinar includes an overview of the UK drug approval process, and the role of patient organisations including Ataxia UK.
If you are an adult living with FA or a family member, you can provide a case study with evidence of how FA affects you as part of the approval process. If you are interested in sharing your experience of FA, or took part in the Omaveloxolone trials, contact research@ataxia.org.uk.
Watch the webinar recording here:
For further information, watch our previous webinar on the UK approval process for medicines here.