Ataxia UK is coming to you
Ataxia UK is coming to you! We’ll be travelling around the UK to the capitals of the devolved nations to connect with Friends in a series of one-day events featuring an action-packed programme.
The programme will be similar in each location, with some sessions tailored specifically to that country, so there is no need to attend in more than one of these locations. It will include ‘It Works For Me’ talks from Ataxia Friends, research updates, a Doctor’s Q&A, a presentation from the Chief Executive of Ataxia UK and interactive breakout sessions.
This is a great opportunity to meet up with other people living with ataxia near to you, connect with local Support Groups and find out more about how Ataxia UK can support you.
The bookings for the Roadshow events are now closed. If you have any queries, please contact Anastasia at conference@ataxia.org.uk
The ticket includes a buffet lunch and refreshments throughout the day.
Cancellation policy – please note that refunds will only be granted in very exceptional circumstances, due to the cost implications of putting on these events.
Bursaries
We have limited bursaries available on a first-come, first served basis to cover 50% of ticket prices and travel costs, including for carers.
To be eligible for a bursary, you must receive means-tested benefits. Recipients will pay for their travel and tickets in advance, and then be reimbursed after the conference, within 4 weeks of providing their receipts. If you would like to apply for a bursary, please contact Anastasia using the contact details below.
If you have any questions about these events or would like assistance with booking a ticket please contact Anastasia at conference@ataxia.org.uk or call 020 3196 0440
The bookings for the Roadshow events are now closed.
Cardiff
The bookings for the Cardiff event are now closed – if you have any queries, please contact Anastasia at conference@ataxia.org.uk
Saturday 20th April 10:00 – 16:30
The Clayton Hotel (St Mary’s Street, Cardiff, CF10 1GD)
Cardiff Roadshow Agenda 2024
9:30-10:30am
Registration and tea/coffee
10:30am
Welcome
10:40am
Ataxia UK update from Sue Millman, CEO of Ataxia UK
11:00am
Updates from Wales Neurological Alliance, Ana Palazon
11:20am
It Works For Me – find out how other people manage the challenges of their ataxia
11:35
Tea break
11:45am
Improving Rare Diseases Services in Wales, Emma Hughes (Genetic Alliance Wales)
12:00pm
Breakout sessions: TBC
1:15pm
Lunch
2:30pm
Research Updates, and a Doctor’s Q&A with Dr Thomas Massey, Cardiff University
3:40pm
It Works For Me – find out how other people manage the challenges of their ataxia
3:50pm
How can Ataxia UK support you, Wendy O’Mant, Head of Services at Ataxia UK
4:10pm
Closing Remarks
4:20pm
End of the event
Throughout the day, there will also be 45 minute bookable one-to-one advocacy sessions with Jessica Sugden, Ataxia UK’s Helpline and Advocacy Officer.
The Clayton Hotel is a 2 minute walk from Cardiff Central Train Station and a 16 minute walk from Cardiff Queen Street station.
There is no onsite parking at Clayton Hotel Cardiff however, there are plenty of options nearby. The best spot to drop off is on Penarth Road.
Cardiff Central Sation Car Park APCOA
2 min walk to the hotel
£13.25 for the day
Address: Cardiff Central Station, CF10 5RS
John Lewis Car Park
4 min walk to the hotel
Up to 10 hours £11.50
Address: Hayes Bridge Road, Cardiff, CF10 1EG
Entrance: For John Lewis Car Park via Hayes Bridge. See location on Google Maps
You navigate to the John Lewis Car Park with a Sat-Nav using the postcode CF10 1EG.
St David’s Shopping Centre Car Park
Up to 10 hours £11.50
Address: Mary Anne Street, Cardiff, CF10 2EQ
8 min walk to the hotel
Entrance: For Multi Storey Car Park via Mary Ann Street See location on Google Maps
You navigate to St David's Multi Storey Car Park with a Sat-Nav using the postcode CF10 2EN
Belfast
The bookings for the Belfast event are now closed – if you have any queries, please contact Anastasia at conference@ataxia.org.uk
Thursday 20th June 10:00 – 16:30
The Hilton Hotel (4 Lanyon Place, Belfast, BT1 3LP)
Belfast Roadshow Event Agenda 2024
9:30-10:30am
Registration and tea/coffee
10:30am
Welcome
10:40am
Ataxia UK update from Sue Millman, CEO of Ataxia UK
11:00am
It Works For Me – Baclofen Pumps
11:15am
Northern Ireland Rare Disease Action Plan, Finola McGrady from Department of Health, NI
11:35am
How Ataxia UK Can Support You, Wendy O’Mant, Head of Services at Ataxia UK
11:50am
Tea Break
12:05pm
Research Updates and Doctor’s Q&A session
1:15pm
Lunch
2:30pm
Breakout Sessions
- Neurophysiotherapy with Victoria Conway
- Have Your Say in Ataxia UK with Sue Millman
3:40pm
Tea Break
3:55pm
It Works For Me – Alex Duncan
4:10pm
Closing Remarks
4:30pm
End of event
Train: The hotel is a 5 minute walk from Belfast Lanyon Place train station.
Parking: Discounted parking is available at the APCOA car park next to the hotel, at a cost of £12 for the duration of the event. A discount code will be provided to delegates.
There are two disabled parking spaces directly in front of the hotel, you can apply for one of these to be reserved for you on the registration form. Please note these will be allocated on a first come first served basis, but there are more disabled spaces in the APCOA car park.
There is a turning circle in front of the reception for easy drop-off.
Edinburgh
Bookings for the Edinburgh event are now closed – if you have any queries, please contact Anastasia at conference@ataxia.org.uk
Saturday 22nd June 10:00 – 16:30
Novotel Edinburgh (Park 15 Lochside Avenue, Edinburgh, EH11 4DG)
Edinburgh Roadshow Event Agenda 2024
9:30-10:30am
Registration and tea/coffee
10:30am
Welcome
10:40am
Ataxia UK update from Sue Millman, CEO of Ataxia UK
11:00am
It Works For Me – Ross Docherty – Wheelchair Rugby
11:15am
How Ataxia UK Can Support You, Wendy O’Mant, Head of Services at Ataxia UK
11:35am
Tea Break
11:50am
Scottish Advice Service, Eilidh Clarke from Parkhead CAB
12:10am
Research Updates and Doctor’s Q&A
13:20am
Lunch
2:30pm
Genetic Alliance Scotland, Natalie Frankish
2:45pm
Breakout Sessions – To Be Announced
3:55pm
Tea Break
4:10pm
It Works For Me – Derek Taylor
4:25pm
Closing Remarks
4:30pm
End of event
By train/tram: from Edinburgh city centre –Edinburgh Park is 15 minutes by train from Edinburgh Waverley train station. The hotel is a 4 minute walk from Edinburgh park train station and tram stop.
By car: For directions by Sat nav, please use the following address EH11 4DG, Hermiston Gate Retail Park
Parking: The hotel has a large number of onsite car parking spaces, and parking is free for conference attendees.
There are 6 disabled parking spaces at the venue, you can apply for one of these to be reserved for you on the registration form. Please note these will be allocated on a first come first served basis.