Scottish Rare Disease Advice Service - Ataxia UK

Scottish Rare Disease Advice Service

Post Published: February 18, 2025

Ataxia UK is thrilled to be working in partnership with Parkhead CAB in Glasgow to provide a new Scottish Advice Service, tailored to meet the needs of people affected by ataxia in Scotland.

Research has shown that mainstream advice services do not successfully meet the needs of the Ataxia Community, due to a lack of knowledge about ataxia and the impact it has on the lives of those affected by the condition.

The service aims to enable the Ataxia Community in Scotland to:

  • Access appropriate care and treatment.
  • Increase their income and reduce the impact of income loss by accessing
    benefit entitlements and dealing with money and debt issues.
  • Plan financially for the future.
  • Deal with housing issues and make appropriate housing choices.
  • Deal with employment issues, including working hours, retirement,
    and reasonable adjustments.
  • Enable them to navigate the NHS
    and access therapies mitigating
    the physical impact of their
    condition.

To contact the service, please email ataxia@parkheadcab.org.uk or call 0141 554 0004.

Click here to download a leaflet about the service.

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